The U.S. Centers for Disease Control and Prevention (CDC) estimate that 1 to 2% of Americans are affected by von Willebrand Disease (VWD), the most common hereditary bleeding disorder. For women, it takes an average of 16 years to receive a diagnosis. The following tools for healthcare providers and patients help to increase awareness of the signs and symptoms of VWD.
Tools for Healthcare Providers and Patients
The AANP von Willebrand Disease Virtual Toolkit is an electronic resource designed to provide information on the topic of von Willebrand Disease for healthcare providers and patients/consumers. In addition to the resources developed specifically for this resource, many links are provided to external resources. Please choose carefully and select those resources that best meet your needs.
AANP von Willebrand Disease Resources
The following resources were developed by a nurse practitioner (NP) advisory group convened by the American Academy of Nurse Practitioners (AANP) with funding from CSL Behring.
Von Willebrand Disease Pamphlet for HCPs - Includes an overview of the signs and symptoms, types/severity, and hereditary patterns of the condition, and the basic guidelines for diagnosing and managing VWD.
Von Willebrand Screening Questions - A patient questionnaire for use when discussing a patient's symptoms or health history.
Von Willebrand Disease Pamphlet for Patients/Consumers - A tri-fold educational brochure for symptomatic/undiagnosed young women and their parents.
Von Willebrand Disease Fact Sheet
Stay Updated! If you would like to receive email notifications when the AANP VWD resources have been edited or updated, click here to submit your name and email address to AANP. For use of VWD updates only.
External von Willebrand Disease Resources
The following websites include information for patients with VWD and healthcare providers. Inclusion of links does not imply AANP endorsement.
Centers for Disease Control and Prevention
Hemophilia Treatment Center (HTC) Directory
National Heart, Lung, and Blood Institute
National Hemophilia Foundation
All About Bleeding